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  • Spina Bifida Occulta
    Spina Bifida Occulta is a common condition, occurring in 10% - 20% of otherwise healthy people. When linked with EDS and tethered cord problems can arise.
  • Tethered Cord
    Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column.
  • Chiari Malformation
    Victoria had a 20 mm herniation with her Chiari I malformation. She has now been diagnosed with a Chiari 1.5 and a 9mm herniation. The boys have low lying cerebral tonsils with blocked cerebral spinal fluid flow. The end result for the boys is Chiari symptoms without the possibility of surgery for relief.
  • Ehlers Danlos Syndrome
    Ehlers Danlos Syndrpme is a degenerative connective tissue disorder. Alex, Nicholas, Victoria and I have been diagnosed with Ehlers Danlos Syndrome - Hypermobility Type.

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April 26, 2013

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November 05, 2011

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October 12, 2011