Well we went to see the Endocrinologist at Children's National Medical Center on Wednesday last week. My hope for this appointment was two prong: (1) rule out Cushings Syndrome and (2) find an endocrinologist who would be able to help us put figure out the endocrinology part of the puzzle. The good news is that the doctor did rule out Cushings.
The disappointing part was that we did not find a doctor who can help us figure out the endocrinology issues with Nick. To be honest I didn't think we would find such a doctor on our first try. But we have been very happy with Children's - afterall we have Dr. Keating as our rock star neurosurgeon - so if there was hope it was here where we have found answers in the past.
Unfortunately, the endocrinologist we dealt with was a closed minded, intellectually lazy, arrogant jerk with a text book case of superiority complex. Yes, this awe inspiring doctor had us pegged as stupid, overly protective parents with nothing better to do than take up Dr. Awesome's valuable time at the suggestion of our pediatrician. Dr. Awesome spent a great deal questioning why and how our other doctors are approaching the treatment of the boys.
People I tell you I have grown in the past year. I did not argue with Dr. Awesome. I tried to explain things to him but when he wasn't interested in getting the big picture and trying to figure things out I let it go. Seriously, I did not push anything with Dr. Awesome. Of course that does not mean that I can't have a good rant right here.
I am quite certain that Dr. Awesome is probably quite good in the areas that are interesting and easy. I am certain Dr. Awesome is competent enough to rule out Cushing's Syndrome because it is an area where Dr. Awesome is familiar and comfortable with.
I don't expect any doctor to totally get all of the kids issues. I prefer if a doctor tells me he/she doesn't know x, y or z but is willing to learn. I don't deserve to be treated like an imbecile by an intellectually uninterested doctor because I don't have an MD after my name. I don't deserve to be dismissed because a doctor isn't interested in even listening to my concerns about my child simply because I did not go to medical school.
I get that my children are medically complex - I deal with their complexities every day. I spend a great deal of time dealing with these issues and I honestly don't anticipate most doctors being able to connect all the dots in one sitting (I have found 3 to date). But I do expect a doctor to take the time to listen to me because last time I checked that is what the insurance company and I are paying that doctor to do - listen (maybe learn something new) and figure it out.
I am thrilled that Nick does not have Cushings Syndrome. However, once again it is left to me and to Steven to connect the dots and figure out how to deal with Nick's issue. Maybe I should have gone to medical school afterall.